The information below is courtesy of the Michigan Health Association in Michigan (MHAM)
Special Advocacy Event: June 8, 2017, 3:30 p.m.
Where: Hyatt Place Detroit/Livonia | 19300 Haggerty | Livonia 48152
What: The Latest on Federal Health Care Action & Possible Privatization of Publicly Funded Mental Health Services in Michigan
MHAM President & CEO Mark Reinstein will update the latest information on these critical issues and respond to attendees’ questions.
*What will be the fate of the federal Affordable Care Act and funding for Medicaid under the Trump administration and the 2017 Congress? Has any definitive action occurred as of June? If not, what can we expect to possibly see?
*And in Michigan, where do matters stand on Governor Snyder’s 2016 proposal to transfer Medicaid mental health beneficiaries and funding from CMH programs to Medicaid HMOs? Are the FY-18 state budgets done? What do they say about next steps on this issue for Michigan?
*What can we as concerned citizens do about the above matters?
There is no cost to attend this educational session.
To reserve your spot, e-mail Matt Hudkins at firstname.lastname@example.org or return the Word or .PDF registration form.
A special quilt with human rights themes is on display through June 9, 2017, at the Michigan State University Museum. The Project 60/50 Quilted Conversation Community Quilts collected quilt squares from many people on human rights that are important to them. The quilt is included in a larger display of provocative quilts. Read more about the exhibit here.
Here are some photos of the quilts, quilts squares, and quilters.
From Judith Fryer:
From Elizabeth Pratt:
Release the Stigma:
In support of people with autism:
Crisis Intervention Team Training
Crisis Intervention Team Training was offered to 41 officers from the Tri-county Area.
NAMI Lansing participated with the Lansing Police Department, Community Mental Health, and other partners in the CIT Steering Committee and provided volunteers and other support for the Lansing area’s first ever Crisis Intervention Training. A second training is scheduled for April 2017.
NAMI Lansing Offered the Following Programs in 2016:
- NAMI Family-to-Family
- NAMI Peer-to-Peer
- NAMI Basics
- Family Support Group – Met twice each month
- NAMI Connection Recovery Support Group – Met weekly
- In Our Own Voice presented to many groups around the area including nursing students, church groups, and the Crisis Intervention Training for local police officers.
- Parents and Teachers As Allies
New Programs Ready to Launch in 2017
Volunteers are trained and ready to go for:
- Ending the Silence – a mental illness awareness and suicide prevention program for schools
- NAMI Homefront – A class for families of veterans or active duty service members with mental health issues.
Special Events 2016
- Co-sponsored showing of “Thank You for Your Service”, a movie about the experiences of veterans.
- Mental Health Update – An evening of advocacy updates on national, state and local issues.
- NAMI Walks 2016 in Grand Rapids
- Winter party with Jeff the Magician
- Annual Meeting, Picnic and Potluck in Okemos
- Seminar on how to navigate private insurance for mental illness.
Community Networking and Advocacy
NAMI Lansing was represented at:
- Sparrow mental health services mapping.
- Statewide steering committee for the Certified Community Behavioral Health Centers proposal development.
- Ingham County Mental health court
- Clinton-Eaton-Ingham Community Mental Health Authority board meetings and Access Committee meetings.
- Crisis Intervention Team Training Steering Committing
The Sun Behind the Clouds: a percussion recital that is taking a look into real stories of mental illness through music.
Saturday, April 9th at 2pm
Cook Recital Hall in the College of Music Building
Completely free to anyone!
Come to hear great music together with many voices to show the reality of mental illness-its hardships, healing and hope. There will be new compositions and poetry read by Liz Karney, and a wide variety other music for percussion. Support mental illness and enjoy wonderful music at this event!
The Boston VA is looking for families to help study the genetics of schizophrenia and related disorders. They reached out to NAMI to try to find qualified participants:
We are searching for families with a history of schizophrenia and related disorders, that is, at least three (3) members of the extended family must have each been diagnosed with one of the following:
- Schizoaffective disorder
- Schizotypal personality disorder
- Bipolar disorder with psychotic features
Family members can come from multiple generations, including siblings, parents, aunts, uncles, grandparents, etc. They must live in the U.S., be over 18 years old and be willing to participate in the study. While our research team is based at the VA Medical Center in Brockton, Massachusetts, family members do not have to be veterans and they can be located anywhere in the continental U.S.
The study itself is very simple: it consists of a clinical interview and donating a blood sample, which our research assistant conducts right in the family member’s home. Once completed, each participant receives a check for $130.00.
You’ll find attached a descriptive handout and a flyer for posting on bulletin boards. I’m hoping that you’ll be willing to distribute and post these flyers so that both consumers and family members can learn about this important study. You can also read about the study online by visiting Center Watch (click here).
Your help is very much needed and greatly appreciated. Please don’t hesitate to contact me if you have any questions or would like to discuss further.
Here is another research opportunity from MSU:
My name is Samantha Lewis, MSW. I am a doctoral student in Clinical Psychology at the University of Detroit Mercy.
I am inviting you to participate in a research study that I am conducting as part of a required research capstone project. The primary goal of this study is to better understand the experiences of parents that have an adult child with a serious mental illness. This study has been approved by the Institutional Review Board at the University of Detroit Mercy (1415-60).
Participation in this study involves completing an online survey at your convenience. The survey takes approximately 45 minutes to complete. All responses will be kept confidential and de-identified so that your responses are not linked to you in any way. All participants will be entered in a raffle for an opportunity to win one of two $50 Meijer or Visa gift cards as a token of my appreciation.
In order to participate, you must be:
- At least 18 years of age or older
- Have an adult child (that is 18 years of age or older), adopted child, or stepchild that has been diagnosed with a serious mental illness, such as Schizophrenia, Bipolar Disorder, or Major Depressive Disorder.
- Be married to your current partner or spouse OR be in a relationship with your current partner or spouse for a minimum of five (5) years.
- Have a spouse/partner that is also willing to participate in this study by completing this survey
Please contact Samantha Lewis at email@example.com if you are interested in participating and a link to the online survey will be sent to you.
The MSU Office of Rehabilitation and Disability Studies is looking for participants for a study about sense of community for person with psychiatric disabilities. The information below is from the research announcement.
What is the purpose of the study?
The purpose of this study is to examine the relationship among disability-related, personal and environmental factors in predicting sense of community for individuals with psychiatric disabilities using the strength-based holistic framework.
Who are we?
We are researchers from the Office of Rehabilitation and Disability Studies at Michigan State University. This research project is directed by Boyang Tong, MA and Connie Sung, PhD.
Am I eligible to participate in this study?
You are eligible to participate in this study if you are an individual:
- who are aged 18 or older;
- who had been diagnosed with psychiatric disabilities/severe mental illness such as major depressive disorders, bipolar disorders, and schizophrenia; and
- have a 6th grade or above reading level.
How can I participate in this study?
You can participate by completing an online/ hard-copy survey comprising several psychosocial questionnaires, which will take about 35-40 minutes. Upon completion of the survey, you will receive a $10 gift card within three weeks. Please use the link to complete the survey: https://msucoe.az1.qualtrics.com/SE/?SID=SV_4THoFKx246sDSYJ
If you are interested in taking the hard copy format, please contact Boyang Tong firstname.lastname@example.org
Who will be benefit from my participation?
Your participation will generate useful data to help rehabilitation professionals and researchers gain a comprehensive understanding of the predictors of sense of community so as to provide more effective intervention services for people with psychiatric disabilities. Thus, your support and assistance are extremely important for promoting sense of community for individuals with psychiatric disabilities.
If I have questions, whom should I contact?
If you have any questions about this study, please feel free to contact Boyang Tong at email@example.com.
Thank you very much for your participation!!!
Jeffrey Loeb, producer of A Light Beneath Their Feet, contacted NAMI Lansing about the film which will show on Saturday, November 7, 2015 at 4 PM at the East Lansing Film Festival, Wells Hall Theater C, MSU Campus. Tickets at $5 at the door. Mr. Loeb’s message and description of the film is below:
I would like to suggest an event in which I believe NAMI Lansing and the community will be very interested to attend. I have produced a feature film titled A LIGHT BENEATH THEIR FEET revolving around a family dealing with bipolar disorder that will be screening at the East Lansing Film Festival in November. Copied below is more detailed information about the film:
A LIGHT BENEATH THEIR FEET stars 2015 SAG Award-winning actress Taryn Manning (Orange Is the New Black) as a young mother with bipolar disorder struggling with the looming departure of her daughter, the one force of stability in her life. Seventeen-year old Madison Davenport (Noah, From Dusk Till Dawn, and who next plays Tina Fey’s daughter in the upcoming Sisters), gives a breakout performance as a daughter struggling with the decision whether to stay local for college where she can remain the stable rock in her mother’s life, or to detach and go to her dream college across country. Kurt Fuller, Nora Dunn, Kali Hawk, Maddie Hasson, and Carter Jenkins give standout supporting performances.
Authentic Portrayal of Bipolar Disorder
So often in films the portrayal of mentally ill characters are overblown and played to be sensational. That is not what we wanted from our film; it was imperative that Taryn Manning’s performance as Gloria be subtle, nuanced, and most important — authentic. To ensure authenticity, we sought advice from psychiatric experts as well as from those living with bipolar disorder. We studied memoirs written by authors living with bipolar disorder to get a better understanding of how the condition not only affects a person’s inner thoughts, but also how it manifests in her physicality. Linea and Cinda Johnson, authors of Perfect Chaos, an extremely personal and detailed account of Linea’s struggle to survive bipolar disorder and her mother’s attempt to save her, were particularly gracious to speak with director Valerie Weiss and Taryn Manning and provide additional insights into specific thoughts and behaviors Linea experiences living with bipolar disorder and those leading up to her suicide attempts.
Upon watching A LIGHT BENEATH THEIR FEET, Cinda and Linea said:
“We sat together for a long time after watching the film finding our thoughts, our words and drying our eyes. The acting was so, so good . . . Vulnerable, open, honest, wonderful. It wasn’t the illness alone but the illness was woven into the love and fear of a young single mom. It opened up experiences, memories, and old pain that we had all experienced . . . and deepened our own understanding.”
— Cinda Johnson, co-author of Perfect Chaos, the mother in a memoir about a mother and daughter dealing with the daughter’s bipolar disorder
“The movie was so beautiful. I just wanted to tell you about our viewing experience from the perspective of someone who has been there. I do have to admit that at times it was a little difficult for me to watch because it was so accurate. I saw for the first time what my mania looked like from the outside and it was intense and real and painful and glorious. . . . It was deeply touching to know that you really took into account real lives to make this film. I feel that your love and honoring of all those struggling really shows through, and at no point, like so many other movies, did I feel like you were using mental illness to exploit its irresistible strangeness and scariness. . . . Thank you for all your hard work and please tell Taryn that she was amazing and so spot on. At no point did I ever question her acting or behavior. It was so natural and accurate. I really felt as though I was watching myself.”
— Linea Johnson, co-author of Perfect Chaos, the daughter in a memoir about a mother and daughter dealing with the daughter’s bipolar disorder
Linea’s quote touches on another one of the film’s goals. We hope that A LIGHT BENEATH THEIR FEET will help facilitate discussion and help alleviate the stigma associated with mental illness. We focused on character dialogue and action to ensure that the film was a step forward in the conversation, and not in any manner exploitive. In acknowledgement of achieving this goal, Glenn Close’s organization dedicated to the elimination of the stigma surrounding mental illness, Bring Change 2 Mind (bringchange2mind.org), is endorsing A LIGHT BENEATH THEIR FEET because of its truly authentic portrayal of a family dealing with bipolar disorder. Bring Change 2 Mind is partnering with the film to promote it upon release, and to tap its national network of experts and advocates to attend panels and Q&A discussions at select film festivals and special screenings. Bring Change 2 Mind’s executive director, Pamela Harrington, said:
“[This film] is really beautiful and most endearing. It was heart wrenching and beautiful in its authenticity, all without producing stigma against mental illness in the portrayal or the film.”
— Pamela Harrington, Executive Director of Bring Change 2 Mind, Glenn Close’s organization founded to end the stigma and discrimination surrounding mental illnessThe film will screen at Wells Hall Theater C on the Michigan State University campus on Saturday, November 7, 4:00pmPeople can purchase tickets in person at the festival box office.Also, here are links to our social media sites:Twitter: https://twitter.com/
alightbeneathInstagram: https://instagram. com/alightbeneaththeirfeetWe would love to see you there, and would greatly appreciate if you could pass the word along to anyone and everyone you believe would appreciate seeing the film.
NAMI Lansing was featured in the Lansing State Journal’s Nonprofit Spotlight on Sunday, September 6, 2015! Here is scan of the article. I will update with a link when it is available.
Some states are increasing funding for mental health services due to the desperate need in many areas. State Legislatures January 2015 issue summarizes some of the effective programs being funded around the country. Read the article “Filling the Gap” by Suzanne Weiss. Here are some examples from the article:
- Additional funding in Texas of $250 million over two years only brought the funding back to the 1999 level.
- Colorado use $18.5 million to start a statewide mental health crisis hotline and established 5 mental health crisis centers.
- Oregon added $67 million in 2013 to expand residential psychiatric treatment and juvenile mentla health services.
- Texas requires K-12 teachers and staff to be trained to recognize mental health issues in students.
- Several states funded suicide prevention programs.
The British Psychological Society, Division of Clinical Psychology issued a ground-breaking report: “Understanding Psychosis and Schizophrenia.” The quotes below are from news coverage in Science Daily.
“The report is entitled ‘Understanding psychosis and schizophrenia: why people sometimes hear voices, believe things that others find strange, or appear out of touch with reality, and what can help’. It has been written by a group of eminent clinical psychologists drawn from eight UK universities and the UK National Health Service, together with people who have themselves experienced psychosis. It provides an accessible overview of the current state of knowledge, and its conclusions have profound implications both for the way we understand ‘mental illness’ and for the future of mental health services.”
- “The problems we think of as ‘psychosis’ — hearing voices, believing things that others find strange, or appearing out of touch with reality — can be understood in the same way as other psychological problems such as anxiety or shyness.
- They are often a reaction to trauma or adversity of some kind which impacts on the way we experience and interpret the world.
- They rarely lead to violence.
- No-one can tell for sure what has caused a particular person’s problems. The only way is to sit down with them and try and work it out.
- Services should not insist that people see themselves as ill. Some prefer to think of their problems as, for example, an aspect of their personality which sometimes gets them into trouble but which they would not want to be without.
- We need to invest much more in prevention by attending to inequality and child maltreatment.”
“At its core, CIT is a model of collaboration to improve how police, mental health services,and communities respond to mental health crisis. The model brings stakeholders together toadvocate for the implementation of CIT, develop a program tailored to the community,implement the training and supporting interagency agreements, and provide ongoingcollaboration.” from “The Crisis Intervention Team Model of Police Response to Mental Health Crises: A Primer for Mental Health Practitioners” by Amy C. Watson, PhD andAnjali J. Fulambarker, MSW. Read the full article at this link to this excellent article on Crisis Intervention Teams.
Check out CBS 60 Minutes on Sunday, August 2, 2015 at 7 PM Eastern Time to see coverage of insurance problems in obtaining treatment for mental illness.
Family-to-Family, the most well-known of NAMI’s signature programs, will meet on Thursday nights, 6;30 to 9 PM, September 10 to November 19, 2015. The class will meet on the McLaren Campus in Lansing.
The class is taught by trained teachers who themselves have a loved one with mental illness. Learning about mental illness symptoms, coping skills, and communication methods can be very helpful, as is meeting others whose families have been affected by mental illness.
Mental illness is a brain disorder. Help is available and recovery is possible.
Register now for this FREE class by calling 517-484-3404 or emailing firstname.lastname@example.org or submitting the Family-to-Family Registration Form.
For more information, read the Family-to-Family flyer, or give us a call at 484-3404.
Adult Ask the Doctor Call
Save the Date: June 26th, 2015 from 11:00 a.m. to 12:00 p.m. Eastern Time
Topic: Strong Advocacy Effort Needed to Help Smokers with Mental Illness
Speaker: Dr. Jill Williams
Please submit questions for our speakers to email@example.com and include “Adult Ask the Doctor Question” in the subject line. We will select a few questions to feature on the call before opening the lines to questions from the callers.
Friday adult conference calls with Dr. Ken Duckworth, NAMI’s medical director and a child and adolescent psychiatrist, take place on the fourth Friday of every month. The calls are toll free and are scheduled from 11:00 a.m. to 12:00 p.m. E.T. To access the toll-free call, please dial 1-888-858-6021; access number 309918#.
FROM NAMI: Children’s Ask the Doctor Call
Save the Date: June 19th, 2015 from 11:00 a.m. to 12:00 p.m. Eastern Time
Topic: Black Box Warning Labels
Speakers: Dr. Eugene Beresin & Dr. Steven Schlozman
Please submit questions for our speakers to firstname.lastname@example.org and include “Children’s Ask the Doctor Question” in the subject line. We will select a few questions to feature on the call before opening the lines to questions from the callers.
Friday children’s conference calls with Dr. Ken Duckworth, NAMI’s medical director and a child and adolescent psychiatrist, take place on the third Friday of every month. The calls are toll free and are scheduled from 11:00 a.m. to 12:00 p.m. E.T. To access the toll-free call, please dial 1-888-858-6021; access number 309918#.